The Journey of Being Remembered: Legacy & Memory Making for Children, Families & Caregivers

Date/Time: 11/14/2019, 10:00 am - 4:30 pm

Provider: FHPCA

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10:00 am – 11:30 am HST
11:00 am – 12:30 pm AKT
12:00 pm – 1:30 pm PT
1:00 pm – 2:30 pm MT
2:00 pm – 3:30 pm CT
3:00 pm – 4:30 pm ET

The death of a child, whether expected or unexpected, is a complicated emotional experience for the child, family, and healthcare team.  The pediatric interdisciplinary team has the privilege of being involved in end-of-life care for children and their families to provide expert, compassionate care during this life transition.

Death does not erase a life or a memory.  One lasting gift that can be given to a dying child and the family is the gift of being remembered.  This webinar’s presenters have extensive experience in helping children create their legacy and the imprint they want to leave upon their families, friends, and communities before they die.  They will share stories and creative ways they have facilitated legacy-making experiences for patients, siblings, families, and care providers.  The goal is to provide participants with applicable concepts, tools, and care-delivery models that can be used in their organizations to facilitate providing expert, compassionate end-of-life care.

Attendance certificate provided to self-report CE credits.


  • Insightful ways to incorporate effective, meaningful communication in end-of-life care
  • Anticipatory guidance: how to foster legacy and memory making for the dying child throughout the trajectory of the illness, not only during the final hours
  • How to facilitate memory making for siblings, families, and friends/community
  • Care at the time of death:  understand the concept of “the art of being present”
  • Incorporating complementary and expressive therapies into end-of-life care
  • Community support and opportunities to ease the burden and foster memories for families experiencing the loss of a child


  • Provide an overview of loss, mourning, and grief through the eyes of the patient, parents, siblings, grandparents, and care-giving team
  • Describe how to develop an interdisciplinary plan of care that addresses the physical, psychological, social, spiritual, and cultural needs of the dying child and family
  • Identify at least three interventions that can be incorporated into the plan of care to facilitate the legacy-making process
  • Address the Child Life Specialist’s role and the impact of expressive therapies in end-of-life care
  • Describe at least two ways to support the grieving care team and promote legacy/memory opportunities for care providers
    • Resource list, including books to be used with children and families at the end of life
    • List of legacy-building activities
    • “Must have” list of resources to keep onsite in the case of an unexpected death


This session is best suited for those who want to expand their knowledge and ability to care for children and families on the unexpected, emotional end-of-life journey.  The discussion and content will be guided by insight and expertise from all disciplines that impact dying children and families.  This program is recommended for those seeking insight on a creative, holistic team approach to pediatric end-of-life care including MDs, NPs, RNs, therapists, child-life specialists, creative arts therapists, social workers, chaplains, volunteers, and nursing assistants.

PLEASE NOTE: Webinar content is subject to copyright and intended for your individual organization’s use only.



Photo Jill Wegener
Blythedale Children’s Hospital


Photo Jennifer Kennedy
Blythedale Children’s Hospital


Photo Jennifer Kennedy
Blythedale Children’s Hospital

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